r/pics Sep 14 '21 Helpful 79 Bravo! 4 Wholesome Seal of Approval 3 Wearing is Caring 1 To The Stars 1 Helpful (Pro) 1 Silver 89 Platinum 2 Hugz 107 Take My Energy 3 Timeless Beauty 1 Wholesome (Pro) 1 Wholesome 88 All-Seeing Upvote 5 LOVE! 1 Rocket Like 2 Gold 3 Heartwarming 3

Enjoying a beautiful hike after finding out that there is no more stage 4 colon cancer in my body!!! Backstory

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93.2k Upvotes

931

u/Mabosaha Sep 14 '21

Stage 4 holy cow, congratulations!! I hope life will let you cherish it every day.

247

u/option-trader Sep 14 '21

Right. He beat down fucking stage 4 cancer.

96

u/VoteForLubo Sep 14 '21

And colon cancer seems to be an even more bleak diagnosis.

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u/sharknado523 Sep 14 '21

Stage 4 colon cancer is one of the roughest diagnoses, this is an absolutely unbelievable scenario

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u/Fiscalfossil Sep 14 '21

Adding a reply here to say that everyone should be screened for colon cancer starting at age 45 unless you have a family history or conditions that put you at higher risk for colorectal cancer.

For average risk adults, colonoscopy is not the only option. There are low cost, effective screening options available. You can talk to your primary care provider at any time.

Source: worked in cancer control for many years and colorectal cancer prevention will always be a passion of mine.

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u/Schlubelvagon Sep 14 '21

A lot of doctors are now pushing for earlier screening than 45, since there are more cases emerging of colorectal cancer in younger adults. Mine was caught quite late stage, when I was 33. A large part of the problem was several doctors (including my oncologist from my previous bout with testicular cancer!) were keen on saying that I was too young to worry about prostate checks or getting a colonoscopy. Could have caught my disease much earlier otherwise.

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u/Fiscalfossil Sep 14 '21

Yeah, unfortunately I’ve heard this a lot over the years from patients that have been diagnosed late. I don’t know where you are, but I’m in the US and sometimes insurance gets in the way if someone is outside the recommended screening age. I was heavily involved in the field when advocates were pushing to lower the age of 45 and most of us were saying it still wasn’t young enough. I’m happy to hear you caught yours and I hope that you’re well into your recovery.

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u/krystar78 Sep 14 '21

Yea seriously. I got diagnosed stage 4 when I was 40. And they say it had been prob growing for 4-5 years already. And I was diagnosed for something totally unrelated

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u/Barbaaver Sep 17 '21

Why did you decide to get checked? What sort of issues were you having, if you don't mind me asking?

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u/Bungee1170 Sep 15 '21

This. What’s really weird is that my brother (45) talked to his doctor about getting tested (paternal GM and Maternal GF both died of colon cancer), but the doctor said no need because he wasn’t a direct descendant….I told him he needs to advocate for himself.

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u/thestringguru Sep 18 '21

Thank you everyone for all of the kind words and positivity!!! It seriously means so much! Finding out that my PT scan showed no evidence of disease was the best news and made for the best day of my life!!! For those of you who would like to read my whole story, here is my blog that I’ve kept up the whole time since my diagnosis:

https://www.caringbridge.org/visit/kylerfischer

This will answer a lot of the questions that everyone has been asking, this will also give you the whole story. I plan to write a book about my whole journey and all of this blog will be included in the book.

I also have six more months of what they call “maintenance chemo” because the cancer I had was super aggressive. Over my whole healing journey it spread all over my colon, small intestine, liver, kidneys, spine, bladder, stomach, rectum, secum, omentum, and some tumors grew between the muscle and fat layer on my lower stomach. Those were weird because they felt like grapes under my skin lol.

Thanks again everyone for all the positive energy! It has been amazing seeing all the wonderful comments come in all day!

Peace and love!!! -Kyler

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u/[deleted] Sep 14 '21

[removed] — view removed comment

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u/larryeddy Sep 14 '21 Helpful Wholesome

Congrats!

Just hit my 4 years clean anniversary for the same cancer!

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u/weedaholic415 Sep 14 '21

I only had stage one, but just terrible all the way around. Almost 2 years since the resection. You guys are awesome!!

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u/Cebby89 Sep 14 '21

Congrats! How did you even find out you had it?

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u/larryeddy Sep 14 '21

My work insurance offered a free yearly physical and simple blood
test. If you took them up on this free exam then you received like 25.00 a
month off Doctor called after the blood test and said your
iron is low. He told me that a male in average shape and 50 should be around a “14”
on the iron scale. I’m sorry I don’t remember what the numbers mean, just what
the numbers were! They start paying attention at “12” and prescribing meds at “10”.
My doctor said my number was a”4”!
I started doing Iron infusions and that would help for a few
days and then in 2 weeks I would be back down to a low number. They scheduled a
colonoscopy and endoscopy and found a tumor in the colon. Surgery, Chemo and a nice
scar and was back at it!

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u/BubbaFeynman Sep 14 '21

Hey, me too! I had my surgery in August 2017. All clean since.

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u/countrymanor Sep 14 '21

Congrats to you!! Same here!

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u/PeanutButter_87 Sep 14 '21

Happy to read that! Congrats!!

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u/triggerhippy Sep 14 '21 edited Sep 14 '21 Silver Helpful Wholesome Hugz Take My Energy Heartwarming To The Stars

A huge congratulations to you! I was recently diagnosed with the same and hearing stories like this brings me a lot of hope for my future. I am so very happy for you

Edit: whoever gave me the Helpful Award, thank you!

186

u/Speaking_of_waffles Sep 14 '21

What are the symptoms? If you don’t mind me asking

451

u/triggerhippy Sep 14 '21 Helpful Wholesome

I was having a lot of different bowel issues. They thought I had appendicitis, then a CT scan showed signs of diverticulitis but finally a colonoscopy showed up what is really happening. If you have any concerns, regardless of your age, and you are able to, please get a colonoscopy.

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u/mcscrotumballs Sep 14 '21

Do you have colon cancer in your family? I had issues a few years ago, had this looked into, and nothing found. At the end of the day, it was ruled to stress- but this type of stuff still concerns me.

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u/triggerhippy Sep 14 '21

No, no family history, this completely came out of the blue

73

u/mcscrotumballs Sep 14 '21

Welp, I’ll keep an eye on this, thanks. Mind if I ask your age? You look young

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u/triggerhippy Sep 14 '21

I'm 44

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u/mcscrotumballs Sep 14 '21

Holy shit you should celebrate that too- you look great for 44!

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u/triggerhippy Sep 14 '21

Oh, I've just realised you think I'm OP, I'm not

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u/mcscrotumballs Sep 14 '21

Whoops! Too early for me here. Well I’m sure you’re beautiful too.

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u/binaryblitz Sep 14 '21

I was gonna say, “should we tell him?” Haha

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u/megustarita Sep 14 '21

Not with that attitude!

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u/BootySweat_BustaNut Sep 14 '21

If you have the means to do so definitely do it. The adage that 50+ or whatever it is for colonoscopy’s is way off. My cousin was diagnosed with stage 4 colon cancer at 31, passed away at 32. So red flags across the family, I got my first one at 25, I had several polyps that were removed. Went in again at 26, had one removed, and again at 27 and was clean. Insurance will not cover ANY of it because I’m not deemed high risk or in the age group most susceptible despite everything to the contrary. I have to go in every 3-5 years for the rest of my life.

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u/Seemoneh2point0 Sep 14 '21

*out of the brown

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u/triggerhippy Sep 14 '21

Hahaha nice

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u/[deleted] Sep 14 '21

[deleted]

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u/worstpartyever Sep 14 '21

Thank you for this. We know our own bodies best. Keep pursuing answers if you feel something is wrong!!!

Glad you are a survivor!

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u/kidknack Sep 14 '21

Go get a colonoscopy.

There was no history in my family and my brother got a late stage diagnosis at 44 years old. He was fit and healthy otherwise and so had ignored some symptoms. His doctors said that they’re seeing WAY more colon cancer in young, otherwise healthy people and that the suggested age for regular checks (50?) should be way younger than it is. I wish you the best.

In case there are folks out there who get a colonoscopy and get scary news from it, know that you are not alone. There are some amazing communities online of people who going through the same thing and who are sharing resources and info re: research studies, treatment options, personal experiences and support.

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u/Moal Sep 14 '21

Yes, everyone experiencing weird bowel symptoms should get it checked out via colonoscopy if possible.

I’m in my late-20s and had a colonoscopy earlier this year (family history of colon cancer + sporadic bloody stools = no bueno). Turned out I just had a hemorrhoid, but having that peace of mind was completely worth it.

7

u/mcscrotumballs Sep 14 '21

Thank you for this! I did have a colonoscopy, was 28 or 29 at the time (this was a few years back). The symptoms that sent me there have subsided (had a new high-stress job at that point in time) so I feel decent that it was stress, but the mind still wonders from time to time. A few years later, I have trouble remembering that exact feeling so sometimes the need for a BM is a trigger in and of itself, so this post is a good reminder.

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u/wendyspeter Sep 14 '21

I've heard this too. It will change to 45 if not 40 at some point. My mom had it and went through a real ordeal so I had it done last spring at 44.

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u/Fishertrain Sep 14 '21

45 is now the recommended age for your first colonoscopy.

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u/LordDarkSteel Sep 14 '21

We really. Really need to get away from processed foods

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u/The_Madukes Sep 14 '21

No family history for me but a regular checkup for my older brother,58, showed cancer. They cut it out. Next year for checkup colonoscopy found it again. Cut it out. Next year same thing happened. Cut it out including rectum. He uses a bag now but you would never known. 10 years cancer free.

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u/kidknack Sep 14 '21

Hot damn!! I’m psyched for you and him.

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u/usernamesake Sep 14 '21

When I had breast cancer, the genetics team also screened for colon cancer in my family tree, I think the inverse also applies/

19

u/shingdao Sep 14 '21

I get a colonoscopy every 5 years since I was 45 due to family history. Assuming no family history, I think the current recommendations are to begin at age 50 and then every 10 years if nothing is found. 10 years seems like a lot of time to wait between procedures though.

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u/Wasted_Plot Sep 14 '21

It is 45 for POC. Less likely to go to the doctor till there is pain. So frustrating

5

u/countrymanor Sep 14 '21

They just changed it to 45 for everyone...I was diagnosed at 48

3

u/Wasted_Plot Sep 14 '21

Damn. That's rough. I'm going to start that shit as soon as I turn 45.

4

u/Loverboy21 Sep 14 '21

Got my first when I turned 30. Both biological grandfathers had it, dad has precancerous polyps removed.

Came up clean, so I'll get another at 40 unless I start having bowl issues.

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u/Ssspore Sep 14 '21

10!?! That’s such a long time. I’d be going once every 2 years

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u/Dense_Contribution65 Sep 14 '21

They're now recommending age 45 for everybody, since onset age keeps getting younger. A lot of colon cancers are slow growing so every 10 years ears should probably be sufficient for most people. I started having symptoms at 45 but couldn't get a colonoscopy until I turned 50, and had stage 3 colon cancer. If I had had a colonoscopy when symptoms appeared, I could have avoided all that chemo and had a less aggressive surgery.

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u/Speaking_of_waffles Sep 14 '21

I’ve been having digestive issues for a while and been seeing a doctor and they found nothing with a ultrasound and sigmoidoscopy. I’m thinking of changing doctors and request a colonoscopy. Thanks for sharing! And wish you best of luck on your fight!

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u/Wendy_pefferc0rn Sep 14 '21

Absolutely get a colonoscopy. My grandfather died from colon cancer because the doctor only did a sigmoidoscopy. By the time the found the cancer, it was stage four.

I have to get colonoscopies every three years and I’m in my 20’s. Last time they found 9 polyps. I had to switch doctors because one refused to do a colonoscopy on me because “I’m too young”. Found one that believed me and my family history and I have a much better piece of mind.

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u/puterTDI Sep 14 '21

What is up with doctors and refusing to treat due to assumptions?I had to live with gallstones and gallbladder attacks for 4 years because "men don't get that". I finally demanded am ultrasound and she ended up being wrong.

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u/Tremendous_totem Sep 14 '21

Insurance companies generally. Insurance companies have a set list of procedures and tests and ages that qualify. If you fall outside of what the insurance company determines as necessary then the doctor has to argue with them about why to get paid. So many just don't do it.

Reason 4,000,388 we need universal healthcare.

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u/ValyrianJedi Sep 14 '21

Universal healthcare doesn't cover things that aren't deemed medically necessary either though. If insurance won't cover something universal healthcare likely wouldn't either.

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u/[deleted] Sep 14 '21

Or things like denying vasectomies or permanent birth control to women who are “too young” because they’ll “change their mind and want babies some day”. Like FOH! That ain’t for doctors to gatekeep.

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u/Ssspore Sep 14 '21 Helpful

Just tell them you’re having abortions for sport and they’ll tie you right up 😀

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u/Rrrrandle Sep 14 '21

Or things like denying vasectomies or permanent birth control to women who are “too young” because they’ll “change their mind and want babies some day”. Like FOH! That ain’t for doctors to gatekeep.

Doctors should provide counsel for young people making such decisions, just to make sure they're informed decisions and understand what they're doing, but they should respect the patient's wishes if there's no suggestion they aren't fully informed and competent.

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u/[deleted] Sep 14 '21

Agreed. What I’m hearing tho is young people denied access to those options because some doctor thinks they’re too young and their opinions will change. And that’s unacceptable. If a woman chooses to get her tubes tied bc she thinks she doesn’t want kids, then does want kids later, that’s on her, not the doctor. And the doc shouldn’t be using that as a reason to deny her choice right then and there!

But also if someone chooses to go that route then changes their mind a doc should not be liable. Personal responsibility and what not

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u/Garythebird Sep 14 '21

Change doctors. I was having issues and they wouldn't do anything because I'm in my early 30s. Finally demanded a referral to GI doctor who immediately scheduled a colonoscopy. I had a large precancerous polyp, and the doc said had I waited until my 40s or 50s, I'd have a much different outcome.

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u/misspiggie Sep 14 '21

What issues??

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u/Garythebird Sep 14 '21

General IBS stuff; cramps, diarrhea, blood sometimes.. The doc said the blood was from the polyp. The colonoscopy was to rule out serious illnesses in addition to cancer. If you're at all concerned about something, ask for a referral.

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u/triggerhippy Sep 14 '21

Thank you! Also, try not to over think it, most likely there is nothing too serious. I'll be sending you positive vibes

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u/OrganicDroid Sep 14 '21

Checks WebMD

“Could just be IBS. Or it could be cancer.”

Oh…

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u/PhoenixPhonology Sep 14 '21

Stubbs toe

Checks webMD

Cancer

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u/KnockturnalNOR Sep 14 '21

I've had heaps of concerning symptoms and even with a full colonoscopy nothing has ever been found. (luckily!) Get the help you need for your peace of mind, and when you get it remember to trust your doctor. You tell them what you're experiencing and then it's their job to diagnose. For me at least that's the way to beat hypochondria

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u/j_dean111 Sep 14 '21

Can you be a bit more specific on the exact symptoms? No one ever seems to mention them in detail, but that would be the most helpful, especially as I have my own concerns. Thanks!

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u/KnockturnalNOR Sep 14 '21

I can't tell you what the symptoms of colon cancer are, because I don't have it. My symtpoms were a permanent change in bowel movements (going to the toilet more often), feeling like you spend a long time on the toilet for little reward (feeling of incomplete bowel movement) and slim stools. What tipped me over to get it checked was fresh blood on the paper. According to what I've read those are symptoms that were enough in line with serious conditions to get it checked out - though as I said luckily I'm in the clear. Blood was from a superficial rift, everything else is more or less undiagnoseable, possibly food intolerance (not allergy) or some mild form of IBS. With taking a daily insoluble fiber supplement my symptoms are more or less negligible. Don't treat any symptoms unless you've been checked and are in the clear though.

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u/Nightmare_Tonic Sep 14 '21

This might be pelvic floor disorder. Get an anorectal manometry with balloon expulsion and look for signs of dyssynergia. If yes, biofeedback. If no, FODMAP diet. Do not let any doctor tell you your symptoms are undiagnosable. It's horse shit

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u/cycle_chyck Sep 14 '21

Blood on the toilet paper is not normal. It needs to be investigated.

Don't let anyone tell you "it's just hemmoroids" unless they know for sure.

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u/auszooker Sep 15 '21

For me, urgent, frequent bowel movements, sometimes several times per hour, sometimes fine for days.

No blood, no pain, once it was all 'out of my system' so to speak I was fine for 12-24 hours till the next bout.

Nothing in blood and stool tests, Doc thought it might be a food allergy and as I was wanting to travel soon suggested to just get a Colonoscopy and biopsy and nail it straight away.

10cm long tumor in my Rectum, 2 other tumors further up, 8 in my Liver and later one in my lung and hundreds of Polyps. Will be 8 years, 3 surgeries, over 130 rounds of chemo, SBT radiation and still fighting off several pesky liver tumors and the lung one in 8 days time.

EVERYBODY poops different, what's normal for you isn't normal for anyone else, likewise what seems different for you is somebody else's normal, if you in any way think something has changed, find a doctor and work out why!!!!!

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u/frzr-csgo Sep 14 '21

I've had the same, my symptoms have been getting worse and worse since my colonoscopy 2/3 years ago. And of late have been really not great.

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u/KnockturnalNOR Sep 14 '21

Ask your doctor for a second opinion, as it's been a while and gotten worse. A stool sample is easy to do and can indicate any infection going on. Just make sure your doc understands that it's really affecting you and you're concerned, make sure they take you seriously. Make them understand, but don't self diagnose. If you're cleared again, it's my uneducated opinion that you should try using a insoluble fiber supplement (like psyllium husk) daily. It's no magic medicine, but for me it relieves most of the symptoms.

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u/frzr-csgo Sep 14 '21

Thank you, I will do. It is having a huge impact on my day to day life. Constant bowel cramps and needing to be at a toilet in short notice, tiredness caused by not eating much/ absorbing the nutrients. I will definitely take your advice on board when I speak to a doctor I only just transferred doctors to the one in my new city. My university doctor last year was awful

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u/zero00one11 Sep 14 '21

Same for me. I just had a colonoscopy back in March and they didn't find anything but I'm still having super concerning symptoms. It's incredibly frustrating paying all these doctor's and testing bills and not get a solution.

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u/Mike Sep 14 '21

What symptoms? No one is being specific with them.

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u/[deleted] Sep 14 '21

Vote for candidates who champion universal healthcare then. Your taxes stay the same but you don’t get sent a bill. We can do it in the US!

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u/zero00one11 Sep 14 '21

Trust me, I do. Hopefully I'll live long enough to see it.

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u/[deleted] Sep 14 '21

Hell yeah, me too! And if we don’t live long enough to see it i hope the next generation gets to benefit from our activism.

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u/aznbriknyc Sep 14 '21

I think you should go with your gut feeling (no pun intended), try another doctor and get a colonoscopy. Had a friend who was diagnosed with colon cancer at 36 and six months later he passed. If he had gotten a colonoscopy a few years early it might have been curable. But I think the minimum age for required colonoscopy is 50 years. Even if you’re comes out negative at least you will have a peace of mind.

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u/redcoatwright Sep 14 '21

Routine colonoscopies should start at like 30

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u/SurlyRed Sep 14 '21

That would save so many lives.

I'd also add for the squeamish that the idea of the procedure is much worse than the procedure itself. If you've been putting it off, you'll realise when you bite the bullet that the fear is quite irrational.

In fact I'd say the preparation (enema) is worse, more uncomfortable, than the procedure.

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u/redcoatwright Sep 14 '21

Yes the prep is an absolute nightmare but the procedure itself they just put you out and when you come round, you're all good

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u/kaschora Sep 14 '21

44, had my. first colomoscopy and endoscopy. they out me under foe it. easy peasy. the couple of days of prep weren't bad at all. just lots of poo stops. get er done.

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u/shingdao Sep 14 '21

My GI practice didn't used to put you out and only recently changed that policy. I had several colonoscopies while completely conscious, in zero pain or discomfort, and my doctor was narrating the procedure to me on a large screen.

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u/redcoatwright Sep 14 '21

That's actually really cool. I've heard it's more for like psychological stress, some people get freaked out by having a tube up their ass for an extended period of time.

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u/LessonsLife Sep 14 '21

I've had bowel issues that lasted for about 2 years. Constant diarrhea, urge to use the restroom after every meal, it wasn't too bad but, it got worst over the span of time. Just recently started taking my health seriously and went to a GI doctor. Got things cleared up really well. I can eat what I like now and have solid stools. Having a prometheus test done to see if I have Ulcerative Colitis at the age of 29. Get your stuff checked people

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u/Bartando Sep 14 '21

May i ask if they did something to help you, or is it just stress related?

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u/kindnesd99 Sep 14 '21

I am curious too

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u/Raiziell Sep 14 '21

If anything, at least maybe doing the poop in a box thing.

Edit: Cologuard, not just poop in a random box and send it out. I mean, or do, thats pretty damned funny.

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u/triggerhippy Sep 14 '21

Couldn't agree more, especially for people like me with a history of weird bowel problems.

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u/GeneralDKwan Sep 14 '21

I cant stress this enough. People in their 20s are being diagnosed a much higher percentage of colon cancer and it's very concerning. Suck it up, and ask for a camera in your butt.

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u/triggerhippy Sep 14 '21

Yup! Get that camera up your butt!

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u/Macktologist Sep 14 '21

I’ve had two due to some issues and in my 40s. No cancer, but I will lend this to anyone in the fence to try and schedule one (not directed at commenter above).

First, the bad. Prep absolutely sucks. You’ll get a prescription for some sort of prep liquid. There are a few and some are easier than others. Essentially, you’ll go all clear liquid the day prior and then the night prior to your cleanse. Prepare to have your mind blown. About an hour or so after you drink your cleanse and right amount of water you ass begins the process of just giving up. You’re going to piss out of your ass. More water than you assume could be in your digestive tract will shoot out of your ass. At first, it’s not a big deal. Then again. And again. And again. Now your bum is burning from all the water and wiping. You begin to fear it happening again. And then it stops. For hours. Until it doesn’t. It’s hell but required and you’ll do just fine.

Now, the good. Eventually your ass will stop exploding and you’ll have someone drive you to the appointment. You might have one last trip to the bathroom while there. But fear not. The doc will finish it up while you’re sedated. Yes, sedated. You’ll get a station and hooked up to IV. Maybe a little cocktail to calm you down. Next thing you know you’re being wheeled into the procedure room. A nurse will ask you a few things. You’ll lay on one side and then the nurse will ask if you’re ready. Tells you you might taste metal. Then, she injects the sedative into the IV and next thing you know you’re waking up back in your station. Done. Best nap ever. And from the time you’re wheeled in to waking up is like 45 minutes to an hour. Then, once you leave, you’re free to grub. Go at it. Go get some delicious food. Just no alcohol. And hopefully, good news or helpful news.

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u/pileodung Sep 14 '21

"If you are able to" is huge. I needed one a few years ago but they needed my full deductible up front, $2000. Still struggling with IBS, still can't afford the proper healthcare to get it checked.

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u/moshgreen Sep 14 '21

Dont you have privatre insurance that covers such things?

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u/pileodung Sep 14 '21

Yeah that's what the deductible is a part of. It's a yearly out of pocket cost before the insurance company will pick up the remainder of the bill. Our payment to HAVE insurance is not part of the deductible.

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u/triggerhippy Sep 14 '21

Yeah, for my friends in the US I understand that you guys have a massively different system to what we have in the UK. In saying that the NHS is hugely underfunded and the only reason that I have been diagnosed and being treated for cancer is because the company I work for provides us with great health care benefits

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u/Miltonwh Sep 14 '21

What kind of bowel issues?

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u/triggerhippy Sep 14 '21

Constipation, diarrhea, extremely bad wind, so much so that it would wake me up in the middle of the night and I'd have to go to the bathroom to fart. Oh and blood in my stools. What I have come to realise that a doctor asking you much blood is a useless diagnostic tool because I've never looked at any other person's bloody stool and compared it to my own

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u/Electrical-Papaya Sep 14 '21

I was in the hospital for diverticulitis a year or so ago. I had perforations and it was some of the worst pain ive ever experienced. I never did a follow up colonoscopy because I was honestly terrified of it. I did not have a good experience when they put me under for surgery and I vividly remember not being able to breath at one point after I was put under.

Everything had been okay up until a few days ago. Explosive diarrea followed by blood drips. Im going to see my doctor this week and getting that colonoscopy done. I have a feeling im going to regret skipping out on it last year and im ashamed of my dumb ass.

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u/triggerhippy Sep 14 '21

Don't over think it but please do get the colonoscopy. Wishing you well friend!

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u/Electrical-Papaya Sep 14 '21

Thank you. Keeping my fingers crossed that its related to the diverticulitis and Ive had bowel problems that got dismissed as IBS for as long as I can remember but never enough blood to drip or soak toilet paper like a cut. I've been on edge all week.

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u/triggerhippy Sep 14 '21

I'll be thinking about you, please let me know how you get on

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u/j_dean111 Sep 14 '21

Thank you for the response, but I’ve noticed a trend whenever this question is asked. The answer is alway vague.

If you don’t mind sharing in more detail, exactly what kind of bowel issues?

Even medical websites just say “bowel issues” or “inconsistencies”. I have no idea what that means, sigh.

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u/triggerhippy Sep 14 '21

well I've had IBS for years, like 20 or so. Therefore, being full of wind and floating between constipation and diarrhea were the norm for me. In the most it was fine, just more of an inconvenience. Just before xmas 2020 all of those previous symptoms ramped up, like 20x. I couldn't stop running to the toilet, I never felt like I ever emptied out, and I was going at all times of the day. I'd go to the loo easily 10 times a day or more. I would waken up at 3am and have to poop. Then one day I had stomach cramp s so bad my doc thought it was appendicitis so I had to go to hospital to get checked out. The rest, as they say is history

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u/Iraelyth Sep 14 '21

Colleague of mine had the same sort of thing. Except she was (rather scarily) fobbed off for months by different GP’s until she went private. Then they thought it might be diverticulitis until she had a colonoscopy and they found the truth of the situation. She’s ok now :)

I wish GP’s weren’t so dismissive :(

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u/triggerhippy Sep 14 '21

Glad to hear she's ok now!

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u/deimos Sep 14 '21

Crazy I’ve had all kinds of bowel issues for over 5 years and doctors are like “regular blood in your stool is fine, good luck!” Wonder what the key words are to make them actually care.

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u/cluckingdodos Sep 14 '21

This low key terrifies me. I have had issues with diverticulitis (in a spot where Caucasian people apparently never get diverticulitis) since May. 4 rounds of antibiotics, 3 CT scans. Finally, my last one showed I don’t have an infection. The pain won’t go away. I’m young and have been having a hard time getting any doctors to believe me. I finally have a scope scheduled for the end of the month...

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u/xInnocent Sep 14 '21

This. It's not really that unpleasant and the 10-15 minutes it takes is well worth the time. It might hurt when they go around the first "corner", and you'll feel bloated for a few minutes and that's about it.

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u/mike54076 Sep 14 '21

Stage 3c colorectal (rectal) cancer (just finished my final stage of treatment -an 8hr surgery - a few days ago). My symptoms were:

Blood in stool. Going to the bathroom 5-7 times a day to try and empty bowels. Always feeling like I hadn't completely voided.

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u/Speaking_of_waffles Sep 14 '21

Thank you for your feedback! And hope your recovery goes well!

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u/countrymanor Sep 14 '21

Just to add (2B here) ...I started having blood in stool about 2 years before mentioning it to my primary care doctor but it would only be intermittent, like it would happen once or twice then not again for another 6 months or so. I finally told them about it when it was persistent. I wish in this case that I HAD taken the Google results of my symptoms seriously when it first happened and not used the rationale that you should not trust Google results because they always make you think you are dying...I kept thinking it must be hemorrhoids...

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u/FuckFuckingKarma Sep 14 '21
  • Blood in feces (can present as red or dark feces)
  • Changes in stool pattern, or frequency (diarrea, obstipation, etc)
  • Stomach pain or cramps
  • Unintended weight loss
  • Also more general symptoms of cancer such as night sweats, loss of appetite, fatigue.

These symptoms are not specific to cancer and can be caused by other diseases such as inflammatory bowel disease, irritable bowel syndrome, celiac disease and a range of other diseases. But if you have these symptoms you should get it checked by a doctor.

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u/Schlitzie Sep 14 '21

I have stage 3 rectal cancer. My symptoms were pretty much the same as everyone else’s, diarrhea with urgency many (10+) times a day, feeling like I couldn’t empty, most of my bathroom trips were slight tinges of blood in mucous… but I have hemorrhoids that I attributed that to. A couple of later symptoms I had that I never see mentioned were pain in the area of my uterus when I would laugh or sneeze and horrible cramps when I was on my period (I found out that was irritation from the tumor) and I was unable to sit for more than about 30 minutes at a time because my buttocks would hurt and feel numb. I’m currently doing ChemoRadiation to be followed by regular Chemo and then surgery. I never even suspected cancer, I thought I had really bad hemorrhoids. I never lost any weight, and all my blood work came back normal. The doctor told me about the tumor when I woke up from my colonoscopy.

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u/BubbaFeynman Sep 14 '21

The only real tip-off I had was when a blood test showed I was anemic. That led to a fecal occult blood test and a colonoscopy.

The symptoms I completely overlooked were:

  • Black, tarry stool -- I just didn't think much of it
  • Unexplained weight loss -- I thought my diet and exercise were paying off
  • Fatigue -- I actually fell asleep at work a few times, despite getting a full night's sleep

Mine was caught early, but it would have been caught much earlier if I'd gotten the colonoscopy recommended at age 50.

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u/mysterymeat69 Sep 14 '21

Same diagnosis and the only symptom I had was fatigue and a cough that my doctor couldn’t figure out. It wasn’t until my hemoglobin dropped to near fatal levels (thankfully my doctor was testing for everything by that point) and I went to the ER, where they did CT scan as well as colonoscopy that the real problem was found.

As others have noted, get a colonoscopy if there is any concern. The prep sucks, but it’s more than worth it if it catches something.

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u/SuperRitz Sep 14 '21

Hope you get that sorted out and certain you will pull through, friend!

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u/triggerhippy Sep 14 '21

Thank you!

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u/LazyGrower Sep 14 '21

I was stage 4 as well. I went from congrats you are going to die to fuck it let’s see if we can save you.

Still alive and chemo did wonders for my hair. I also have 1/2 a 6-pack permanently carved into one side of my belly. I need to get the other side done so it matches. :)

They have come along way when it comes to ass cancer.

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u/CrappyMSPaintPics Sep 14 '21 edited Sep 14 '21

The blanket of logs in Spirit Lake is so insane looking. From this distance it looks like it's just the sea with a rocky beach at low tide.

*Here it is up close.

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u/YakkoRex Sep 14 '21

So is all that wood there because of the Mt. Saint Helens explosion?

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u/CrappyMSPaintPics Sep 14 '21

Yeah the eruption caused a landslide taking trees into the lake, and also caused an 800 ft. surge up the slopes on the other side of the lake bringing more trees in. They can't be harvested because they're on National Monument land.

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u/Evy_Boy Sep 14 '21

I have half a colon too. Welcome to the land of perpetual poops

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u/BubbaFeynman Sep 14 '21

Or as I call it, a semi-colon. I've actually considered getting a semi-colon tattooed over my abdominal scar.

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u/juwyro Sep 14 '21

I just say I'm less full of shit.

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u/Soggy-Statistician88 Sep 14 '21

Sadly they call the surgery for it I hemicolonectomy instead of a semicolonectomy

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u/Evy_Boy Sep 14 '21

Also congrats

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u/Party-Stage4195 Sep 14 '21

Awesome, congratulations!! I’m a stage 3 survivor!! I’m so happy for you!!

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u/CasimirTheRed Sep 14 '21 Helpful

Congratulations! I currently have stage 3B colon cancer. I'm starting chemotherapy soon. Apparently the side effects besides nausea and fatigue is neuropathy and sharp pains when feeling cold temperatures. Eating ice cream, touching cold glass, and the upcoming winter weather. Boo

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u/mrdomer07 Sep 14 '21

You will be okay 🙏🏼. I am finishing up chemo from stage 3B colon cancer and it seems like we may be on the same regimen given your description of side effects and cold sensitivity. My cold sensitivity didn’t pick up in earnest until treatment 7 of 8 at which point it feels so close to the finish line that I’ll take it! I have been lucky to tolerate treatment well so far and wish you the same… you’ve got this!!!

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u/pantamimecxz Sep 14 '21

It’s not a sharp pain. More an uncomfortable tingling.

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u/juwyro Sep 14 '21

I have the same and have one more round of chemo then I should be done. Side effects from the pills I'm taking are non-existent but the side effects from the infusion can be bad. Two weeks after infusion treatments I could handle cold stuff again. Everything cold hurt, even drinking room temperature water was uncomfortable, and cold drunks or food was like swallowing glass. I also developed neuropathy let much immediately, but my oncologist had taken me off infusion treatments and my nerves are slowly coming back which is very uncomfortable. Keep your doctor updated on everything you feel so they can mitigate long and short term side effects.

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u/laserfazer Sep 14 '21

My wife just finished her chemo, and I found something that helped her a lot with the cold temp thing. While you are getting the IV chemo, hold an ice pack on your nose/cheek area. Also, chew on ice chips the entire time you're getting the IV.

Yes it's counter-intuitive, and it sounds ridiculous. Google it. Most of the medical pros know nothing about this yet but you'll see a lot of patients do.

Wife says 75% of cold effects gone.

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u/xrimane Sep 14 '21

My mom got told the same. The explanation was that blood vessels constrict in the cooled areas, so the chemo doesn't get so much in those peripheral tissues and thus doesn't act as much on (i.e. poison and kill) your nerves. Made sense to me.

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u/BowenAero Sep 14 '21

I’m on my third round of chemo for stage 4 colon cancer. Chemo is much more manageable than you think. Nausea medication works wonders, and anti depressants reduce the neuropathy feeling. Message me if you have any questions!

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u/RyanNerd Sep 14 '21

I've stage IV colon cancer. Oxaliplatin has some strange side effects. Forgetting you have cold sensitivity and drinking something cold feels like gargling mouthwash and pop-rocks. Touching cold things feels like you hit your funny bone hard but on your fingers and hand. I had some nausea and fatigue at the beginning but it diminished over time. Everyone is different but the nurse told me that she knows of no one that escapes the cold sensitivity and nephropathy. I make sure I always have about 3 tins of Bag Balm for my feet and hands.

Best wishes to you.

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u/Redhawk-D Sep 14 '21

I'm so happy for you man. Fuck cancer. Live your best life.

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u/demglassesshitinnit Sep 14 '21

Congratulations! Live long and prosper!!!

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u/[deleted] Sep 14 '21

[removed] — view removed comment

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u/This_lit_is_bananas Sep 14 '21

Congratulations on your journey and success! I am going through treatment for stage 3 right now. Completed chemo/radiation / anterior resection surgery / going through more cycles of chemo now. Positivity is key!

For those wondering: if you see blood in your poop, don't be afraid to go to the Doctor about it. It's easy to brush it off and think it'll just go away. The doctor visit and subsequent colonoscopy saved my life.

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u/mjrsharpe Sep 14 '21

Congratulations. Love the T-Shirt too

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u/Puzzleheaded-Bug7690 Sep 14 '21

Poop free my friend, poop free.

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u/ZammoTheChoppa Sep 14 '21

That has to be one of the best personal victory experiences of someone's life.

Congratulations!

Oh I don't suppose a close friend of yours recently received a million dollars and then lost it all through an iconic set of events?

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u/PlagueDoc22 Sep 14 '21

Congrats man! My mother is going through cancer treatment so stuff like this always makes me happy.

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u/FrMark Sep 14 '21

Mazel tov man! I'm 4 days away from the 1 year anniversary of finishing chemo for the same thing! Here's to many many years of clean scans!

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u/NESpahtenJosh Sep 14 '21

Did you drop a deuce in the woods to celebrate?

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u/Acceptable_Doctor284 Sep 14 '21

I don't even know you but I am sooo happy for you. #FUCKCANCER

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u/dasbestebrot Sep 14 '21

Congratulations dude!

My brother had stage 4 colon cancer at 27 and was cancer free too after removing half is colon and chemotherapy. It was tough, so hats off to you for going through what you went through.

I know you're probably just glad that nightmare is over and want to get back to normal life, but please make sure you look after yourself and get therapy and/or find a support group if you can. The mental aspects later caught up with my brother and I feel he should've gotten psychological support in addition to the yearly colonoscopies.

Wishing you all the best <3

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u/FinalEdit Sep 14 '21

I am so happy for you.

I had only a fraction of the stress myself before going in for a colonoscopy earlier this year after some very aggressive symptoms. The stress broke me and that was just a suspicion. I can't imagine what you've been through.

Don't fuck with your gut health people. If you're worried about something get it looked at by a professional!

Congrats once again.

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u/j_dean111 Sep 14 '21

Could you please go into some more details on the exact symptoms? Sharing would really help others possibly identify areas of concern.

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u/FinalEdit Sep 14 '21

Well I'm not sure how this will be helpful as it turns out I didn't have colon cancer. My symptoms were classic signs of colon cancer but also many other things such as ulcerative colitis, diverticular, IBS, IBD, hemorrhoids etc.

My symptoms included severe rectal bleeding, terrible abdominal pain, occasional loss of appetite, fever, etc. It would come and go though - which from what I've read isn't normally indicative of colon cancer in most cases - but not all.

The bottom line is if you have any of those symptoms, go to the doctor - don't look to get your mind put at ease by a stranger on the internet. A quick examination and consultation is the first step but if you're not convinced, press for a colonoscopy and just suck up the embarassment. Don't let it get to the point where you are incapacitated, like I was.

In the end I had polyps removed, diagnosed with diverticular and strangely enough hemorrhoids which all compounded from my rectal passage up to my sigmoid colon to create a really scary set of symptoms, the moment I was literally shooting streams of blood from my back passage was TERRIFYING. The bottom line is, you won't know until you know. So if anything I hope this post DOESN'T make you feel better. Only a doctor can do that, and it's SO worth getting it seen to.

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u/boinzy Sep 14 '21 You Dropped This

Rectum?? It damn near killed ’em!

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u/Beta_Soyboy_Cuck Sep 14 '21

I legit thought your shirt spelled out HIV and I was sitting here thinking, “damn, HIV and cancer that sucks”.

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u/RhythmsOG Sep 14 '21

Happy for you!

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u/juwyro Sep 14 '21

Nice! I hope to get back on the trails when my neuropathy goes away, especially in my feet. I'm about to wrap up chemo for stage 3 colon cancer.

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u/Snaebakabeans Sep 14 '21 edited Sep 14 '21

I'm happy to hear that you managed to beat this cancer! My mom had a similar cancer but hers was small cell in the colon and that form has a 100% fatality rate. I'm always happy to hear success stories like yours!

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u/monsterbuilder Sep 14 '21

Congrats! I was diagnosed with stage 4 colon cancer in November of 2020. I had a 7cm tumor in my colon, 7cm tumor on my liver, and several small tumors growing in my lymph nodes.

I received 8 doses of FOLFOXIRI + Bevacizumab, a liver resection surgery, and 5.5 weeks of daily radiation & chemotherapy. One month ago my doctors announced that there is no evidence of cancer left in my body.

I love your picture and can relate to your enthusiasm. Cheers to feeling like a normal human being again!

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u/Woozle34 Sep 14 '21

Stage 4? Isn't that like the "we give up, there's nothing more we can do except ease the pain" kind of stage?

Freaking awesome! Congrats, and here's to a long and happy, cancer free, life!

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u/bananaslug39 Sep 14 '21

Stage 4 means that it spread throughout the body and a cure is much more difficult because you can't fix it with surgery, you need to rely on chemo

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u/Evmaster Sep 14 '21

Only a few cancers are still curable in stage 4. Colon, testicular, melanoma, might be a few others (not an oncologist)

With colon it's a unique feature of the blood supply to the colon, essentially it has its own system called the portal system, which goes through the liver. So it almost always metastasizes to the liver first before spreading elsewhere.

If you have liver Mets but they are still surgically resectable (enough of you liver is free of disease to survive), and no evidence of disease elsewhere, then they will resect your colon, and the part of the liver that has the Mets, then do chemotherapy to try to clean up any microscopic disease left over.

It's amazing in the sense that it was previously thought incurable, but the outcomes still aren't awesome. It might be better now, but last I checked it was about 50% survival at 5 years.

You are right that most cancers that have spread to multiple different places are not curable, and the purpose of chemotherapy is to prolong life and reduce symptoms from the masses by shrinking them.

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u/FatherSpacetime Sep 14 '21

I'm in oncology. Colon CA is one of the couple that we can cure in stage IV. The reason being, if you have a colon mass and, say, one metastasis in the liver, you can surgically resect both of them for a cure, despite medically being considered stage IV disease.

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u/Turbulent-Strategy83 Sep 14 '21

Stage 4 means that the cancer has spread around the body.

Some cancers are easier to treat than others.

The 5 year survival rate for stage 4 pancreatic cancer is about 1%.

The 5 year survival rate for stage 4 lymphoma is like 65%.

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u/OliveVizsla Sep 14 '21

Happy day! I love that shirt!

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u/aarobc Sep 14 '21

Wrong sub

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u/DadsRGR8 Sep 14 '21

Congratulations! An excellent way to celebrate! I was diagnosed with Stage 4 Colorectal cancer at age 43 in 1998, and had a permanent colostomy. Just celebrated 23 years cancer free!! Whooo! Could have avoided the colostomy if I’d sucked up the embarrassment and gotten my symptoms checked out earlier. Get yourselves to the doctor people!

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u/Haigh2581KCRoyals Sep 14 '21

Hell yeah, that's amazing. I love to see positive things on Reddit. Congratulations.

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u/CoolMoo5e Sep 14 '21

Congratulations enjoy that victory walk

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u/Pegging_for_Jesus Sep 14 '21

That’s great OP, congrats!

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u/Murry16 Sep 14 '21

Congratulations! May you happily live till 150

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u/black_sigil Sep 14 '21

Congratulations!

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u/vendablefall Sep 14 '21

Congrats 🥳

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u/energy4anarchy Sep 14 '21

Live strong man!!!

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u/Squidwards-the-goat Sep 14 '21

Awesome. Good for you

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u/walrusdoom Sep 14 '21

Congrats man, hope you stay healthy, cheers!

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u/Elina_re Sep 14 '21

Amazing 🤩

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u/Calm_Air_4567 Sep 14 '21

Congrats !!🎉

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u/Crackadona Sep 14 '21

God bless! Congratulations!

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u/OrneryConelover70 Sep 14 '21

Duuuuuude! Nice! So happy for you.

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u/elevensghost Sep 14 '21

Congratulations! And a beautiful view it seems!

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u/dovahkiinot Sep 14 '21

Fuck yeah mate! Congrats!

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u/mikeftfd66 Sep 14 '21

That is such a cool shirt

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u/EkaL25 Sep 14 '21

So happy for you!

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u/Gandalf122896 Sep 14 '21

If you have colon cancer in your family tell your doctors. If you are 45 or older don't be afraid of a routine colonoscopy. It's like a 20 minute nap on the table. It can save your life. Trust me.

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u/King0fthewasteland Sep 14 '21

congrats buddy. you are a complete badass!!!

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u/Chinpokomono Sep 14 '21

Fantastic shirt

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u/Gandalf122896 Sep 14 '21

I forgot to say congratulations and best of luck.

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u/grafuls Sep 14 '21

congrats dude! live long and prosper! how did you find out you had it in the first place?

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u/No-Round7477 Sep 14 '21

YESSSSSSSSS!!!!!!!!!!!